You may be eligible for services and supports, financial assistance or other benefits if you have MND or are caring for a person with MND. The services listed below may or may not apply to your individual situation, so please refer to the websites and phone numbers listed for more detailed information about eligibility. This list is by no means exhaustive. Your MND South Australia Regional Advisor can provide you with further information and advice.
You may be eligible for services and supports, financial assistance or other benefits if you have MND or are caring for a person with MND. The services listed below may or may not apply to your individual situation, so please refer to the websites and phone numbers listed for more detailed information about eligibility. This list is by no means exhaustive. Your MND South Australia MND Advisor can provide you with further information and advice.
Aged Care Assessment Team (ACAT):
The role of the Aged Care Assessment Team is to provide information, advice and guidance around suitable care options for people over 65 years. Importantly, the Aged Care Assessment Team also facilitate access to community care packages (CACP/EACH), residential respite care and permanent placement in aged care facilities. These teams are based in the community and may be accessed throughout South Australia.
Carers SA is a not for profit association that provide information, services and support directly to family Carers and the people they care for. Carers SA provides community education to assist Carers and their families so they are able to provide the best possible support to loved ones. They support carers through the provision of information, education, training, advocacy, counselling and other support services that may assist them in their caring role. They also raise awareness about the role of carers amongst the wider community. Services which may be of interest include the Carer Advisory Service, which provides information and referral and the National Carer Counselling Service.
Phone: 1800 242 636
Centrelink delivers a range of payments and services to the Australian public during times of change. Payments which may be of relevance to people with MND and/or their carer include;
Disability Support Pension:
Provides Income support for people who have an intellectual, physical or psychiatric condition that prevents them from working. This payment is income and assets tested. In most cases your doctor will need to complete a section of the application form in order to establish medical history and the limitations caused by your illness.
Provides income support for individuals who are unable to work as a result of the care they provide to someone with a disability, who is frail aged or suffers from a chronic medical condition. This payment is income and asset tested and subject to an assessment of care needs.
A smaller, supplementary payment for carers which is not income tested and may be paid either as a single supplement or in addition to other payments including Carer Payment and the Aged Pension.
This payment is provided to an individual whose partner has died. It is income and assets tested.
Low Income Health Care Card & Pensioner Concession Card:
Enables the card holder to access subsidised prescription medications and other concessions in the community such as transport. This benefit is Income but not asset tested.
For those able to continue employment or volunteer work, mobility allowance may be able to assist with the cost of transport. To be eligible, the individual must work for more than 8 hours a week and have a level of disability that precludes the use of public transport. The allowance is not subject to income and asset tests.
Essential Medical Equipment Payment:
An annual payment to people who are experiencing increased home energy costs associated with the use of essential medical equipment such as an electric wheelchair or airbed vibrator. Those who require additional heating or cooling as a direct result of their medical condition may also qualify for this payment. To be eligible, applicants must be a Centrelink or DVA concession card holder and be able to provide evidence of the equipment or condition being claimed.
Phone: 132 717
Commonwealth Carelink and Respite Centres (CCRC):
A national service, CCRC provides information about aged care, disability and community services available in your local area and advice about how to access these services. The Centres can also facilitate access to in home or residential respite care by arranging and managing respite packages for carers.
Phone: 1800 052 222 (Business Hours)
Department of Veteran’s Affairs:
Provides a range of services, specialised equipment and benefits to eligible veterans, current and former serving members and their families.
Ph: 133 254
My Aged Care:
An Australian Government initiative which provides telephone and web based information and referral in order to help people navigate the aged care system. Includes information about government, non-government and private aged care services available in the community and how to access these supports.
Phone: 1800 200 422
National Disability Scheme (NDIS)
The NDIS is the new way of providing individualised support for people under 65 years of age with permanent and significant disability, their families and carers. The NDIS provide information and referrals, links to services and activities, individualised plans and where necessary, supports over a lifetime. They raise community awareness and encourage greater inclusion and access to mainstream services, community activities and other government initiatives.
Phone: 1800 800 110
Palliative Care South Australia (PCSA)
The peak body for palliative care in South Australia. PCSA is a not for profit organisation dedicated to supporting people living with terminal illness and those who care for them. To find out more about palliative care, how to access palliative care services in your local community and specialist counselling around issues of grief, loss and bereavement.
Phone: (08) 8271 1643
South Australian Transport Subsidy Scheme (SATSS):
Provides half price taxi travel for people who are unable to use public transport because of a qualifying severe and permanent disability such as Motor Neurone Disease. The application form needs to be completed by the person with Motor Neurone Disease or carer as well as your GP or specialist medical practitioner. The scheme operates in all areas throughout SA.
Phone: 1300 360 840
For more information please refer to: www.sa.gov.au
Telstra Disability Equipment Program:
Can assist with a range of equipment and communication devices to enable people with communication challenges to access the standard telephone service To be eligible, you must be a Telstra customer, have a disability which prevents the use of a standard telephone handset and have an application form signed off by a medical practitioner or relevant allied health professional.
Phone: 1800 068 424
Correct as of May 2016