For health professionals and service providers

If you are an Australian health professional or health care service provider caring for someone with motor neurone disease (MND), MND Australia can provide evidence-based information to enable you to provide and promote optimal care outcomes for people living with MND.


MNDcare

MNDcare is the pre-eminent website for Australian health and community care professionals involved in MND care and support. The MNDcare website, managed by MND Australia, is carefully researched and reviewed, so you can feel confident that the information is up-to-date and reliable.
 
No matter where you work, MNDcare will help you to: MNDcare logo
  • Assess the needs of the person with MND and their carer 
  • Get evidence based and best practice MND information 
  • Make referrals to the right provider at the right time 
  • Provide a coordinated, multidisciplinary team approach to MND care. 
  • Referral pathways


Diagnostic Tool - Could this Be MND?

GPs can now access a 'red flags' diagnostic tool Painless, progressive weakness – Could this be motor neurone disease?

The tool outlines MND signs and symptoms including bulbar and limb features, respiratory and cognitive features as well as supporting factors that point towards a diagnosis of MND.

GPs and other health professionals can download the red flags diagnostic tool from the MNDcare website www.mndcare.net.au

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The Motor Neurone Disease diagnostic tool has been officially recognised as an Accepted Clinical Resource by the Royal Australian College of General Practitioners.

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Australian Doctor SPecial Feature:
How to Treat Motor Neurone Disease

From April 2016, health professionals can access an 8-page Australian Doctor article – How to Treat Motor Neurone Disease.

Written by Dr William Huynh and Professor Matthew Kiernan, the comprehensive special feature includes motor neurone disease case studies, signs, symptoms and 'red flags' for MND.

Essential reading for all health professionals, the article is available online at Australian Doctor.

Visit the Australian Doctor website and scroll down to the Education/How to Treat section.

To access onine content health professionals must register with Australian Doctor using their AHPRA number. Subscription is free. 

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Other information resources

If you are new to caring for someone with MND, start by reading Some Facts about MND More Facts about MND and the Living Better for Longer evidence based Fact Sheet series. These publications answer the most commonly asked questions about MND and also cover management of symptoms and how to access services. You may also like to download the information for your client or suggest they contact their State MND Association for paper copies. 
 
Aspects of care for the primary health care team is a detailed clinical guide for GPs and the primary healthcare team who are supporting people living with MND and their families. Paper copies are available from your State MND Association. This booklet complements the MNDcare website and provides an evidence-based approach to care. 
 
The National Health and Medical Research Council (NHMRC) has developed two resources on stem cell treatments. The resources provide medical practitioners and patients with information on the stem cell treatments that are available, and the risks involved in undergoing unproven treatments.
 

Professional development

Healthcare professionals and service providers can contact their State MND Association to find out about professional development opportunities like information sessions designed especially for people who work with people with MND.



Conferences

Annual National MND Australia Research Meetings

The 13th MND Australia Research Meeting will be held at the Charles Perkins Centre, The University of Sydney, on Friday 10 November 2017. MND Connect 2017 will take place at the Charles Perkins Centre, The University of Sydney, on Saturday 11 November 2017. 

Bienniel MND Australia National MND Conference

On Tuesday 21 June 2005 the first official National MND Conference was held in Melbourne.

The aim of the Conference is to promote sharing of expertise and understanding of MND care management issues amongst health professionals, service providers and MND Associations to improve the care and support of people living with MND. These conferences have provided the opportunity to promote best practice MND care across Australia and New Zealand since 2005. They have been instrumental in encouraging health and social care related collaborations and research.  

The MND Australia 8th National Motor Neurone Disease (MND) Conference, Care, Collaboration, Communication, was held on 12 September 2016 at the Melbourne Exhibition Centre.

View conference presentations here.

The 9th National MND Conference will be held in September 2018. 

Allied Professionals Forum

On the day prior to the International Symposium on ALS/MND each year the International Alliance holds the Allied Professionals Forum (APF). The APF functions as an educational and training forum for healthcare professionals who work with ALS/MND. This forum offers health care providers from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. 

Click here to register for the 2017 Allied Professionals Forum. The cost is £110 and includes lunch and refreshments.

View the 2017 APF agenda here

International Symposium on ALS/MND

The International Symposium on ALS/MND organised by the MND Association of England, Wales and Northern Ireland is the largest medical and scientific conference on ALS/MND. It brings together leading international researchers, ALS/MND organisations and health and social care professionals to present and debate key innovations in their respective fields.
 
The Symposium is planned as two parallel meetings, one on biomedical science and the other on research and advances in the care and management of people affected by ALS/MND. Joint sessions consider issues of mutual concern, challenging current views and practice. 

The Susie Harris Travel Fellowship is intended to provide funds for attendance at a combination of overseas endeavours that must include the International Symposium on ALS/MND, in addition to visiting a laboratory, hospital or care centre for training in new techniques, knowledge or conduct of collaborative research valuable for motor neurone disease. It is funded by the Susie Harris Memorial Fund. 
 
The 26th International Symposium on ALS/MND 2015 was held in Orlando, USA, 11–13 December 2015.

The 27th International Symposium on ALS/MND 2016 was held in Dublin, Ireland, 7–9 December 2016.

The 28th International Symposium on ALS/MND 2017 will be held in Boston, USA from 8
–10 December 2017.

The 29th International Symposium on ALS/MND 2018 will be held in Glasgow, Scotland from 7 - 9 December 2018 

The 30th International Symposium on ALS/MND 2019 will be held in Perth, Australia from 4 - 6 December 2019 

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