Tell your story

Join MND Australia and the State MND Associations to advocate for people living with MND. There are several ways that you can champion the rights of people diagnosed with MND when over the age of 65.

Tell your story Do you have a story about the care and support services that you’d like to share? We'd love to hear from you if you or a family member have received great care and support or if you see gaps that need to be filled. Email: iwanttotellmystory@mnd.asn.au

Other ways to take action

Arrange a meeting with your local member

Email the Hon Jane Prentice MP

Write a letter to the Hon Jane Prentice MP

MND Charter

Phil Brady considers himself one of the "lucky ones" as he has been living with MND for 20 years. In that time he has found inadequacies in the Aged Care system like long waiting lists, provision of equipment and bureaucracy that defies logic. Read Phil's story