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Bay of Fires Trek 2024

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2 weeks to go! Have you signed up for the Walk to

2 weeks to go! Have you signed up for the Walk to Defeat MND?

The Walk is a fun and exciting community event, with entertainment, great food, and a vibrant atmosphere, all for an important cause!

By taking part in the Walk, you help raise vital funds for MNDSA and make a difference to the lives of South Aussies living with Motor Neurone Disease and their loved ones.

Help us support our MNDSA clients and join the march today! Learn more at https://my.mndsa.org.au/events/85/walk-to-defeat-2024

BAE Systems held a community fundraiser at their E

BAE Systems held a community fundraiser at their Edinburgh facility in late March, in memory of their colleague, David.

Over 20 staff were nominated and “Ice Bucketed” with some great outfits on display.

$2,197 was raised for MNDSA and a lot of fun was had along the way!!

After being diagnosed with MND, our client Mark fo

After being diagnosed with MND, our client Mark found a way to move forward, while also relishing his past experiences – taking on the Heysen Trail.

Mark has already trekked over 31 kilometres on the first stretch of the trail, from Cape Jervis to the Bluff, near Victor Harbor. Now, he’s aiming to walk another 178kms, from Burra to the Barossa Valley. He wishes to spread awareness, and support others in the MND community, by raising $10,000 for MND SA over the next 12 months.

You can support Mark’s fundraiser here: https://my.mndsa.org.au/my-fundraising/2141/peace-of-mind-palya---mark-weaver

Mark wrote, “I hope that you can support me in reaching my fundraising goal to acknowledge the support and kindness that [MND SA] has showed me, so they can continue to provide this invaluable service to people diagnosed with MND and support their families into the future.”

@mnd_australia revised and updated booklet 𝑴𝒐𝒓𝒆 𝑨𝒃𝒐𝒖𝒕 𝑴𝑵𝑫 follows on from the introductory guide 𝑊ℎ𝑎𝑡 𝑖𝑠 𝑀𝑁𝐷?

𝑴𝒐𝒓𝒆 𝑨𝒃𝒐𝒖𝒕 𝑴𝑵𝑫 is a guide for people living with MND and their family. It provides more detailed information about what to expect following an MND diagnosis, as well as treatment and care options and ways to manage symptoms.

The guide also includes information about services offered through the State MND Associations.

Hard copy booklets are available from MNDSA and the other State MND Associations, and a digital copy of the booklet can be downloaded here: https://www.mndaustralia.org.au/getattachment/12ebc8d0-fbe8-4f99-84d5-e6b952b65086/MoreAboutMND_guide_MNDAustralia_web_2024.pdf

Just over 2 weeks to go! Have you joined the march

Just over 2 weeks to go! Have you joined the march yet?

Last year’s Walk to Defeat MND was a blast – even the Premier joined us for the Ice Bucket Challenge!

Who will be there this year? Find out on Sunday 19 May and support South Aussies living with MND.

Join the march today! Learn more at https://my.mndsa.org.au/events/85/walk-to-defeat-2024

The Volks Enthusiast Club of South Australia (VECS

The Volks Enthusiast Club of South Australia (VECSA) runs an event each year called RATeX. In March 2024 the event was run as a fundraiser for MNDSA.

The current President of VECSA lost his Mum 5 years ago to MND, and MNDSA assisted his parents during the very tough 20 months from diagnosis to the end. Unfortunately, last year one of his Mum’s cousins was also diagnosed and is currently being supported by MNDSA. Andrew decided to give back to MNDSA as thanks for the support that we gave to his relatives and their support networks.

🔦 Meet Serena – our Philanthropy & Partnershi

🔦 Meet Serena – our Philanthropy & Partnerships Manager! 🔦

💙 How long have you been at MNDSA?
Since March this year

💙 Why did you join MNDSA?
I met someone last year who lost his wife to MND. His story was incredibly sad, and I was extremely moved to learn just how cruel this disease is. It stayed with me, so when I saw a position advertised to join MNDSA, I felt drawn to it and compelled to apply.

💙 What's your favourite part of your role?
I have the pleasure of coming to work every day in such a caring environment with likeminded people. Being able to successfully obtain monetary donations, sponsorships, gifts in kind, or have someone leave a gift in their will, gives me a wonderful feeling of knowing that I’ve been able to help make a difference.

💙 What are some of the challenges?
There are other diseases and organisations that get much more publicity and funding than MNDSA, and a lot of organisations have already aligned themselves with other charities. The challenge for me is to raise awareness and secure funding. We rely on donations, fundraising, grants, and bequests in order to exist and continue to provide vital services.

💙 What did you do before joining MNDSA?
I’ve worked as a Business Development Manager, Events Manager, Community and Fundraising Coordinator and I’ve worked in Disability, Aged Care, Welfare and with Guardianship of the Minister children. I’ve worked for organisations like RSPCA QLD, Leukaemia Foundation QLD, The Hospital Research Foundation, Canteen, NDIS, and I’ve also worked on Christmas Island and Nauru as a Manager in the detention centres.

💙 Quirky fact about yourself?
I’m an addict for the TV show Friends. I watched this show when my dad was dying and after he passed away. It was the only thing that made me smile and, if I’m ever feeling a bit flat, it is my go-to. My work desk has lots of Friends memorabilia - posters, notebooks, a mug etc. Even my text tone is the “Pivot!” quote from the TV show.

You, Me and MND gatherings are a great way to conn

You, Me and MND gatherings are a great way to connect with our MND community in a friendly setting. We welcome you to register online and come along to our May sessions.

When & where:
SOUTHERN - Monday 6 May – Colonnades Tavern, Noarlunga Centre
NORTHERN - Wednesday 8 May - Grove Tavern, Surrey Downs
CENTRAL - Tuesday 14 May - Westies Bar & Bistro, Richmond

These catchups are a great opportunity for our MND community, their friends and family to get together and meet each other for a coffee or a bite to eat in a relaxed setting.

Check out the events page on our website for further details.
Register here: https://my.mndsa.org.au/events

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