Newsletter – MND Matters - MND South Australia

Trek Flinders Ranges

Trek the Flinders Ranges and raise funds for MNDSA

Interested in Volunteering

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The topics in this weeks MNDSA E-Newsletter includ

The topics in this weeks MNDSA E-Newsletter include:
👉A Change of the MNDSA "Chair"
👉Upcoming International MND Webinars
You can click the link below to access and if you would like to keep up with all the current information on all things MND and MNDSA just email us at: admin@mndsa.org.au and we can add you to the mailing list. This is a weekly E-News sent out every Friday.
http://ow.ly/yREZ50GWPvx

Our other state MND Associations are impressed by

Our other state MND Associations are impressed by these ‘hands free’ sneakers by Zeba Shoes, and we can see why!
These shoes are a good example of ‘adaptive footwear’ for those who have impaired hand function, or those who don’t have stability to bend down to put shoes on. Mens and womens styles are available.
Have a look at the video to see how they work: https://zebashoes.com/

We are delighted to announce the appointment of An

We are delighted to announce the appointment of Andrew Holmes to a casual vacancy on the MNDSA Board.Having grown up in Adelaide, Andrew brings a wealth of experience to our board with a background in PR, Media, Marketing and Communications, working for a number national and state sporting bodies while also starting his own consultancy business, Aitch Communications. He is excited to continue supporting the MND community, having previously worked for three years as the Marketing & Communications Manager for FightMND.

Thank you Andrew for volunteering to help MNDSA make a difference helping both us and our community.

Until there’s a cure, there’s care

💙Everyone deserves a break!💙 Accessible Acco

💙Everyone deserves a break!💙
Accessible Accommodation have holiday, respite, short-term and medium-term stays for anyone wanting accessible accommodation in South Australia (and all over Australia.) 💙Supported by a dedicated team who also have disabilities and love to travel, they get it! 💙 Check out their website and know that what you see is exactly what to expect on arrival! http://ow.ly/CYAG50GU3UP
#mndsa
#community
#nevergiveup

We are thrilled to announce the new Chair of MNDSA

We are thrilled to announce the new Chair of MNDSA is Mr Scott Penhall, taking over from Mr Geoff Thomas OAM at last nights AGM.
Geoff will remain a valued member of the MNDSA Board, and as a Director of MND Australia. Scott, with lived experience as carer for his wife Anna during her MND Journey, has held executive leadership roles over the past 25 years around Australia and overseas. Thanks Geoff and welcome Scott, we are thrilled to have you onboard!

💙Are you looking for information, resources and

💙Are you looking for information, resources and service linkage for yourself, or as a carer of someone living with MND? 💙
👉 "MND Connect" can help!
http://ow.ly/4NXk50GSYvJ 👈
👉Example topics include:
• Managing day-to-day
• Eating, drinking & swallowing
• State MND Association services
• Speech and communication
• Caring for someone with MND
• Managing symptoms (for health professionals)
• MND care approach (for health professionals)
💙We highly recommend you visit this site and take some time to tour it! MND Connect was launched recently as part of the revamped MND Australia website and is an excellent information resource💙

A SPECIAL ANNOUNCEMENT FROM MNDRA 📣We're excite

A SPECIAL ANNOUNCEMENT FROM MNDRA
📣We're excited to announce that our research arm, MND Research Australia (MNDRA), has committed $3.1 million to fund Australian research in 2022, bringing the total amount invested in MND research over the last 35 years to $46 million 🥳
MNDRA has awarded a total of 21 grants – the Betty and John Laidlaw MND Research Prize for a mid-career researcher, three postdoctoral fellowships and 17 innovator grants. Each of the grant recipients are chosen through a rigorous selection process by the MNDRA Research Committee, to ensure only the best research is funded with the highest chance of finding treatments and eventually a cure for MND.
MNDRA research grants are funded through the generosity of donors, including online donations, gifts in wills, and fundraising by the State MND Associations and the MND&ME and MonSTaR foundations.
The major grant recipients for 2022 were:
▪ Betty and John Laidlaw MND Research Prize
Associate Professor Parvathi Menon, University of Sydney
▪ Bill Gole MND Postdoctoral Fellowship
Dr Fiona Bright, Macquarie University
▪ Beryl Bayley MND Postdoctoral Fellowship
Dr Mouna Haidar, Florey Institute of Neuroscience and Mental Health
▪ Nancy Gray MND Postdoctoral Fellowship
Dr Marnie Graco, Institute for Breathing and Sleep
Read the full list of MNDRA grant recipients: https://www.mndaustralia.org.au/currentresearch

MNDSA have been supporting people impacted by Moto

MNDSA have been supporting people impacted by Motor Neurone Disease since 1986. If you have MND and need support or services get in touch with South Australia's MND experts by calling 08 8234 8448 or emailing us: admin@mndsa.org.au Until there's a cure, there's care #MND #UntilThereIsACureThereIsCare #MotorNeeuroneDiseaseSouthAustralia

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until there's a cure, there's care

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