No-one can work on their own to manage MND
MNDSA Clinical Pathways and Referral Network
MND is a progressive and ultimately fatal disease that results in degeneration of the motor neurones, or nerves, in the brain and spinal cord. GPs and others in the primary care team can make a significant difference to the quality of life of people with MND with timely care, support, and symptom management. While the primary healthcare team may be able to meet some of the needs of the person with MND and manage many of their symptoms, the input of other health and social care professionals is vital to the care and support of people with MND. The GP may act as the gateway to other services, referring to appropriate specialists in the multidisciplinary team. Where a person with MND is being seen regularly by a neurologist, or other specialist service, a shared-care approach may be agreed between the specialist and GP. This is particularly important where the specialist is based some distance away and access becomes increasingly difficult as the disease progresses.
MNDSA Clinical Pathways and Referral Network is a go-to online tool to help health and medical professionals understand the journey of a patient with MND and includes information about management from pre-diagnosis to bereavement.
Aged Care Facility Staff
When a person with MND moves into a residential aged care facility their care needs may be quite different to those of other residents living there. MNDSA offers education about the specific needs of people living with MND, the supports available and, where relevant, individual-focused education for Aged Care Facility staff. Contact MND South Australia to discuss the specific training and education needs that you or your team have with regards to MND. Our team can customise training to suit your specific needs.
Motor Neurone Disease – Aspects of Care for staff of residential care facilities is a 60 page book compiled by MND NSW following many requests from care providers, residential care staff and from people with motor neurone disease and their carers for information about caring for people with MND in the residential care setting.
MND Professional Development for Health Professionals
MNDSA hosts education forums and webinars for health professionals and service providers about the latest evidence-based and best practice methods of supporting people with MND. These opportunities provide valuable professional development and opportunity for attendees to network and learn more about state-wide and local services. Find out more about MNDSA Clinical Pathway and Referral Networks at www.mndsapathway.com.au.
To find out about future education and professional development opportunities please call MNDSA (08) 8234 8448 or view the MNDSA events calendar. Due to the Corona Virus pandemic face to face MNDSA Professional Development is currently suspended until further notice. Subscribe to our mailing list and be notified when they resume and to find out about online and future face to face events.
National MND Conference
The national MND Conference is hosted by MND Australia. Members of the MND community from across Australia meet to network and learn about the latest in MND care, advocacy, and research. To find out more about the next conference, contact MND Australia (02) 9816 5322.
International Symposium on MND
The International Symposium on MND/ALS will be held from Tuesday 7th December to Friday 10th December 2021. A call for abstracts is now open. Click here for more information or to watch video footage of presentations and other information presented at the 2020 online event.
Allied Professionals Forum
Annually, the MND Association of the United Kingdom in cooperation with the International Alliance of ALS/MND Associations hold an Allied Professionals Forum. The forum is typically held the day before the International Symposium and provides an opportunity for attendees to exchange information about good practice and to facilitate the highest standard of care for people with MND and their carers. The content of the forum presentations not only focuses on practice research but also the hands-on work involved in caring for people with MND. Click here to find out more.